In the quaint town of Russell, Ontario, an extraordinary individual by the name of Jonathan Pitre not only captured the hearts of many but left an indelible mark with his resolute determination and impactful advocacy endeavors.1
Jonathan Pitre’s life was shaped by a rare genetic anomaly referred to as recessive dystrophic epidermolysis bullosa (RDEB). This genetic condition is characterized by the infliction of severe blisters on both the outer and inner layers of the skin. The distressing nature of RDEB makes even the simplest activities a painful ordeal for those affected.
RDEB is a condition that results from genetic mutations affecting the production of a crucial protein responsible for binding the layers of skin together.2